Morning Wanderer.........vulvodynia I am afraid is another word for Pudendal Nueralga.......and what you are experiencing is PGAD, which is what I have the two very often go together.......although I have been PGAD for two weeks, I am not counting my chickens before they hatch as this has happened before.
Vulvodynia, vaginism, vulvabestalydnia and IC all the the Pudendal Nerve as the main culprit, however most IC cases will be a bladder wall infection that is not picked up by normal NHS testing.
My clitoris can feel permanently erect and aroused and very sensitive. If you find a picture of the Pudendal Nerve you will see its many many branches, which go amongst many into the vulva, and right next to the clitoris so when the PN is aggravated the clitoris nerve which is almost touching becomes aroused. A lot of ladies with this also get piriformis/sciatica as well, the sciatic nerve runs straight past the Pudendal nerve.
Avoid orgasms at all costs as it only aggravates the nerve, and they will believe me feel like the earth has not only moved but exploded not at all pleasant. It's probably years of IBS that has caused this, which has now tightened your pelvic floor so it becomes a vicious circle.
Regards IC symptons if you have them, I am now seeing a Professor in London who has been studying lower tract UTIs for forty years, and since 1992 he has seen 5000 patients with so called IC all of those patients had UTIs and many of them more than one layered in the blader or urethra.
I am not going to sing to loudly from the rooftops, I am having almost pain free days, as I have always felt my bladder was the start of the whole vicious circle, for me the PGAD is the worse of it all, but I have been burning free in my vagina, rectum. My priformis/sciatica has gone six weeks of sports physio sorted that and I have mastered the art of relaxing and breathing correctly without giving it a second thought into the pelvic floor.
Also three weeks ago I went to see a homeapath , this appointment was made in April,that's how long her waiting list is so I thought she must have something about her, she is a qualified microbiologist same as the Professor I am seeing and she changes many years ago to homeopathy, and my daughter personally has a friend and her family who have been,add better where western medicine did not. So I have an open mind, but she diagnosed things I had even forgotten I had had, and she knew more about PN, PGAD and bladder wall infection than most specialists I have seen. my husband saw her as well, and she said about his German Measles he had as a child, he hadn't even told me that. She used a form of electronic accupucture points on the feet, which correspond to the relevant parts of the body, the nerves for that point, well when she did my pelvic area and bladder the meter reading went off the scale. So watch this space I have nothing to loose.
Sorry my posts are so long, but I like to share what I have learnt on this horrid journey as it might just help someone else suffering.
