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Author Topic: WHERE TO START?  (Read 15512 times)

toffeecushion

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Re: WHERE TO START?
« Reply #30 on: August 14, 2014, 04:13:29 PM »

I'm glad you are going to get the help you need.

Can I ask what day of your period you had your blood test, as I am thinking of doing the same.

Thanks
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curlywurly

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Re: WHERE TO START?
« Reply #31 on: August 17, 2014, 09:00:08 PM »

Hi Rosie C

Nice to hear such positive news!!  Thanks for the reply.   :) :) :)

CW
 :)

Fabulous News. I did the same recently because my gp was next to useless!!! Best money I ever spent,... seeing Dr Gluck at her clinic in London. Feeling so much better already, after getting the correct diagnosis. Good  for you!!! x
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curlywurly

  • Guest
Re: WHERE TO START?
« Reply #32 on: August 17, 2014, 09:10:35 PM »

Hi CLKD

Thanks for the flowers, never get them much!  :)

I do try to to the deep breathing - especially when having a P.A.

I got one yesterday, well the pain in the stomach (spreading to the back), dizziness, couldn't breathe which I associate with a P.A. and I (for the first time, instead of suffering at home) went to A & E.  I was put on a drip and told it is gastritis - given meds for gastritis.  Told it isn't normal to have such a pain in the stomach during a P.A.

I am also currently on a therapeutic trial for Secondary Addison's Disease. 

I wonder if any of these things would apply to you?  To have suffered so much from such a young age you poor little mite.

As you can see I am trying anything and EVERYTHING to sort out what is going on with me!  Have had enough of it!!

My blood test results and symptoms do back up my suspicions too.

Just a few little thoughts, ignore me if I am totally off track!

With very best wishes,

CW
 :)

:thankyou: Girls for the updates!  At last, someone who listens!


Deep breathing needs to be practised.  10 mins. every hour so that it becomes 2nd nature.  Deep breath through the nostrils, count for 10, let breath out slowly through the mouth.  I use to fall asleep whilst practicing!
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curlywurly

  • Guest
Re: WHERE TO START?
« Reply #33 on: August 17, 2014, 09:16:52 PM »

Hi 2 cats

Please take a look at the Pernicious Anemia website they are full of very good information and if you put your blood test results up on there they will give you fabulous advice.  There is a Facebook page too (I don't have FB) apparently.  They are very informative about all things B12 and folate, not just Pernicious Anaemia.

www.pernicious-anaemia-society.org

Hope they can help shed some light on your symptoms.  :)

CW
 :)



Hi Curlywurly,

Re: B12 and Folic acid - I went to the drs yesterday for my results and was told that I have enlarged blood cells again which could mean a B12 and folic acid deficiency.  (I stopped taking my b complex vitamins when I ran out - doh! - thought I'd see if I could do without, as I'm always taking one supplement or another...)

I have been a irritable and a little anxious again lately and I'm wondering if being deficient in these vits and minerals may be the cause?

My gp explained that enlarged red blood cells get stuck when trying to move around the body...goodness knows what that might trigger!  My oestrogen levels were normal (down to HRT I suppose) though I didn't get the number.


My rollercoaster journey in perimenopause continues...
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curlywurly

  • Guest
Re: WHERE TO START?
« Reply #34 on: August 17, 2014, 09:19:57 PM »

Hi Greyhoundgal

Thanks for the reply  :)

It is brilliant to be taken seriously at last.  I think I am in for a bit of a bumpy ride but I will hang on in there for as long as it takes to feel anything like normal!

Thanks for the 'heads up'.  :)

CW
 :)

That's great news curlywurly - amazing how much better you can feel just when someone actually listens to you ::)  Good luck with your HRT - it can sometimes take a while to kick in but hang on in there if you can.....
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curlywurly

  • Guest
Re: WHERE TO START?
« Reply #35 on: August 17, 2014, 09:26:26 PM »

Hi dulciana

Thanks for the reply  :)

Is there a night version of the Bach's then?  Interesting if there is.  Would stop those horrid wide awake and worrying moments.

Not on you were made to fee embarrassed - how awful.  You are right it does seem to be the younger women who are not the most sympathetic or even giving a 'duty of care' for someone who is obviously struggling with peri or meno.

Maybe I shouldn't tar them all with the same brush, but my consultant is male and older and has started me on (hopefully) the right track with no making me feel as though I am wasting his time, the exact opposite in fact.

Hope things change for the better in the future!  This website has been a godsend to me and I am giving the details to my friends (who aren't there yet!) but will definitely benefit.

Thanks again.

CW
 :)

Great news, Curlywurly!  And on the subject of Bach Rescue Spray, you can also get a Night version of the same product.

I'm sure it doesn't help when a GP is female but far too young to have any experience of the menopause themselves.  I went to a meno clinic a while back, only to be seen by a female Dr. who must have been all of 35.  It did not help and made me feel embarrassed.  I've definitely had the most sympathetic responses to anything meno from older female GP's; also, (curiously) male GP's who are not sitting there thinking, "I won't be like that when I'm 50-or-whatever".   
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curlywurly

  • Guest
Re: WHERE TO START?
« Reply #36 on: August 17, 2014, 09:32:26 PM »

Hi toffeecushion

Thanks so much  :)

My period stopped in Sept 2013, no sign of anything since! 

If you order the blood tests I would give them a ring or email them to ask advice about what day you should be tested, they are really lovely and helpful.  Also would help to make sure you get the right test/s done.

Dr. Currie said she was surprised how many blood tests I have had done (it is a lot) and it isn't always necessary - maybe a chat to a decent consultant would help?  I found mine through the Find a Specialist section on here.

I had so many blood tests done to check for Secondary Addison's and also menopause.  A bit over the top probably but it is nice to see what the heck is going on with me on paper!

Good luck with everything  :)

CW
 :)

I'm glad you are going to get the help you need.

Can I ask what day of your period you had your blood test, as I am thinking of doing the same.

Thanks
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2cats

  • Member
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  • Posts: 534
Re: WHERE TO START?
« Reply #37 on: August 18, 2014, 08:17:22 AM »

Curly wurly - thanks for taking the trouble to post that info re anaemia...going to take a look at the fb page etc now.   :)
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CLKD

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  • Posts: 75147
  • changes can be scary, even when we want them
Re: WHERE TO START?
« Reply #38 on: August 18, 2014, 11:12:11 AM »

We're a Mine of Information ........
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SueRoe

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Re: WHERE TO START?
« Reply #39 on: August 18, 2014, 11:39:12 AM »

CurlyWurly, Sorry for the delay in replying - I'm now on FemSeven Sequi patches. I was in the process of switching from Evorel Sequi when you asked your question so couldn't answer it accurately. Evorel Sequi contains what my GP called "one of the less friendly" progesterones and I had trouble with very poor mood and cramping during the progesterone phase. Femseven is better for me in that those symptoms have gone and my mood is much more even. Haven't had a bleed on FemSeven yet though so can't tell you how that compares. I hope this post isn't too late to be of any use to you in helping you make your decision on HRT. Good luck.
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CLKD

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  • Posts: 75147
  • changes can be scary, even when we want them
Re: WHERE TO START?
« Reply #40 on: August 18, 2014, 12:23:18 PM »

 :thankyou:  Freda  …….. onwards and upwards, hopefully your symptoms will remain 'improved'!
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curlywurly

  • Guest
Re: WHERE TO START?
« Reply #41 on: September 18, 2014, 01:58:54 PM »

Hi 2cats

Sorry for the delay in replying.  Had a family member over from Australia, just as I was starting my HRT!  Timing!

No problem hope they have helped you.  There is also www.b12d.org to look at with regards to B12 deficiency.  They have a questionnaire on there to see if it applies to you and also a protocol to follow (if your GP will listen!) ::)

Very best wishes

CW
 :)


Curly wurly - thanks for taking the trouble to post that info re anaemia...going to take a look at the fb page etc now.   :)
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curlywurly

  • Guest
Re: WHERE TO START?
« Reply #42 on: September 18, 2014, 02:04:32 PM »

Hi Freda

Thanks so much for taking the time to reply - I apologise for my delay in responding.

Thanks also for the details of what you are on (and for not thinking me too nosey!).

Great you are feeling better on it - hope this is still the case.  :)

I started on Utrogestan (25 days out of 28 as my periods had stopped) and Oestrogel 1 pump.  Had no bleed on the 3 day break hope this is normal.  The hot sweats disappeared within days (thank goodness!).

I am hopeful things are going well.  I am on other treatment too for B12 deficiency and Secondary Addison's Disease but so far so good!  It is FABULOUS  to not be pouring with sweat every 45 mins and getting a decent night's sleep!  Fingers crossed it continues.

Take care

CW
 :)



CurlyWurly, Sorry for the delay in replying - I'm now on FemSeven Sequi patches. I was in the process of switching from Evorel Sequi when you asked your question so couldn't answer it accurately. Evorel Sequi contains what my GP called "one of the less friendly" progesterones and I had trouble with very poor mood and cramping during the progesterone phase. Femseven is better for me in that those symptoms have gone and my mood is much more even. Haven't had a bleed on FemSeven yet though so can't tell you how that compares. I hope this post isn't too late to be of any use to you in helping you make your decision on HRT. Good luck.
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2cats

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  • Posts: 534
Re: WHERE TO START?
« Reply #43 on: September 25, 2014, 04:50:03 PM »

No problem Curly Wurly..and thanks for the extra info.  :)
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