Please login or register.

Login with username, password and session length
Advanced search  

News:

Mobile version of the Forum Click here

media

Pages: [1] 2

Author Topic: Stopping HRT, risk to bones  (Read 15775 times)

Dandelion

  • Member
  • *
  • Posts: 1863
Stopping HRT, risk to bones
« on: January 29, 2014, 01:24:24 PM »

Hi

I would like to ask a question about stopping HRT at 47 and risk to bones.

See my signature line for details.

I am on day 9 of Femoston 2/10, which I went on cos 1/10 didnt work.
I don't want to go on the other synthetic HRT's because of bad experiences that I have read regarding norethisterone and levongesterol (SP) and bad moods, while the dydrgogesterone is not causeing me any bad moods.

I woke up this morning in a lather of sweat. I had to put the fan on, then I was cold, so I turned it off, thinking maybe it was just my imagination, and got hot again, and so on.

I have asked my doctor about utrogestan, and she hasn't got a clue what it is.
We do not have a menopause clinic or a well woman clinic, or even a nurse who deals with menopause, so, synthetic progestins are my only choice.
I do not want to ask the doctor about utrogestan again, in case she gets funny with me.
I dont want to go to another doctor to ask about hrt, as she may get a bit funny with me.

The 2/10 works about 30% but it's not enough for me, so I want to give HRT up.
Will this make my bones all brittle>?
I am 47 years old and dont even know if I am menopausal.

I also have got a white discharge this last couple of days but my headache has lessened.

Im in despair to be honest, cos it looks like i will have to feel overheated and moody and not have a life while some other women get their life back.
It's the sweating that pisses me off the most, and needing a wash all the time.

« Last Edit: January 29, 2014, 01:36:03 PM by Dandelion »
Logged

honeybun

  • Guest
Re: Stopping HRT, risk to bones
« Reply #1 on: January 29, 2014, 01:42:06 PM »

Very few doctors know about utrogestan. You have to ask for micronised progesterone. I don't see why your GP would get funny with you.
If you explain to your GP the problems you are having then perhaps they would prescribe something new to try.


Honeyb
x
Logged

Dandelion

  • Member
  • *
  • Posts: 1863
Re: Stopping HRT, risk to bones
« Reply #2 on: January 29, 2014, 01:48:33 PM »

Very few doctors know about utrogestan. You have to ask for micronised progesterone. I don't see why your GP would get funny with you.
If you explain to your GP the problems you are having then perhaps they would prescribe something new to try.


Honeyb
x
Hi honeyb

My doctor said that there was the patch with levongestrel in, but I am scared to take that.
There's also the congugated estrogens but again, I am scared of the side effects.

Do you think that I have not given this 2/10 dose long enough?
I have only been on it nine days.

Sorry to be a nuiscance, im just really scared to go back to my doc.

Also i am wondering what risk no hrt wil have to my bones.

Thanks
« Last Edit: January 29, 2014, 02:01:56 PM by Dandelion »
Logged

honeybun

  • Guest
Re: Stopping HRT, risk to bones
« Reply #3 on: January 29, 2014, 03:35:20 PM »

You could you an oestrogen only patch and utrogestan. There is no need to go anywhere near conjugated HRT.

It is a bit soon to say that your stronger HRT is not working so try to stay with it for a while yet if you can.
You are right you really need to take some form of HRT if you can at your age. Unfortunately it can take a while to settle on one that improves your quality of life.

If this HRT does not suit then you will have to go back to your GP. Try writing down or printing out the information you need and go and discuss your needs.


Honeyb
x
Logged

Hurdity

  • Member
  • *
  • Posts: 13941
Re: Stopping HRT, risk to bones
« Reply #4 on: January 29, 2014, 05:44:02 PM »

Hi Dandelion

I agree with the others.

It is your right to have the medication you need and only the other day the chief of NICE was urging people to be more assertive with their doctors regarding drugs, treatments and medication.

As has been said print off the info from here.

Here is the info about oestrogens:
http://www.menopausematters.co.uk/treatafter.php

Here is the info about progestogens:
http://www.menopausematters.co.uk/to_progestogens.php

Your doc should not make you feel like this. Are you able to take someone with you to help you insist on what you want?

Having said that, I do agree also you should give it more time to settle before deciding it's not for you. Sudden increase in oestrogen can cause headaches temporarily but you would usually feel this straight away I would have thought?

I would continue with HRT to help protect your bones until at least 51-2 - the average age of natural menopause.

Hurdity x
Logged

Dandelion

  • Member
  • *
  • Posts: 1863
Re: Stopping HRT, risk to bones
« Reply #5 on: January 29, 2014, 06:26:51 PM »

You could you an oestrogen only patch and utrogestan. There is no need to go anywhere near conjugated HRT.

It is a bit soon to say that your stronger HRT is not working so try to stay with it for a while yet if you can.
You are right you really need to take some form of HRT if you can at your age. Unfortunately it can take a while to settle on one that improves your quality of life.

If this HRT does not suit then you will have to go back to your GP. Try writing down or printing out the information you need and go and discuss your needs.


Honeyb
x
Hi Honeybun and thanks.

I am perplexed why my GP looked at me blankly and asked ME what bio-identical/utrogestan was. She had never heard of either.

I think I was feeling really fed up earlier.

I willl give this 2/10 longer to work.
I do have hopes that it will start working, and I accept that, perhaps, I am being impatient.
I'm glad I am not feeling like this after three months on, glad it's early days, the hope is still there.
I have two more months supply of 2/10 left, besides the blister-pack that I am currently on. She gave me three months supply.
Should I give this 2/10 the whole three months to test it?

I agree, re: writing stuff down for the GP. i do that all the time, I put bullet points on a slip of paper, it keeps us focused and saves her time, so I think she likes it.

Logged

Dandelion

  • Member
  • *
  • Posts: 1863
Re: Stopping HRT, risk to bones
« Reply #6 on: January 29, 2014, 06:31:51 PM »

Why not print off some info from this site to take with you to your GP. As has been said, its under micronised progesterone in their drugs book. You can use it with a patch, gel or separate pill such as Elleste.

9 days isn't really very long - I would give it at least a couple of weeks to see if it works. The fact you're having a white discharge would indicate the oestrogen is being absorbed though.

If you come off HRT try to take a supplement such as Osteocare which contains calcium and Vitamin D.
Hi Stellajane

Thank you for informing me that the white discharge means the oestrogen is being absorbed.
That gives me some hope.

The idea of printing off info is a great idea, but me and my GP have been there before, and she didn't like it, saying "I dont have the time to read that...."
The printed info in question was relating to involuntary tranquiliser addiction, she put me on valium and told me I would not get addicted if I only took it a couple of times a week. WRONG! I did get addicted, I stopped taking them thinking I would be ok, as I had stuck to docs instructions and I got terrible withdrawals.
I tried to get her to read Dr Heather Ashton's taper protocol, and she was having none.
I am going to include on my next note to her, that I take to consultations, that, as there seems no support for menopause in our local area, I have read up online.
Here is more suport than my GP, but I cannot expect a GP to specialise in meno.
What would be nice is some kind of meno specialist in our area.
Logged

Dandelion

  • Member
  • *
  • Posts: 1863
Re: Stopping HRT, risk to bones
« Reply #7 on: January 29, 2014, 06:36:12 PM »

Hi Dandelion

I agree with the others.

It is your right to have the medication you need and only the other day the chief of NICE was urging people to be more assertive with their doctors regarding drugs, treatments and medication.

As has been said print off the info from here.

Here is the info about oestrogens:
http://www.menopausematters.co.uk/treatafter.php

Here is the info about progestogens:
http://www.menopausematters.co.uk/to_progestogens.php

Your doc should not make you feel like this. Are you able to take someone with you to help you insist on what you want?

Having said that, I do agree also you should give it more time to settle before deciding it's not for you. Sudden increase in oestrogen can cause headaches temporarily but you would usually feel this straight away I would have thought?

I would continue with HRT to help protect your bones until at least 51-2 - the average age of natural menopause.

Hurdity x
Hi Hurdity and thanks for the links.
I do have a support worker, but he is a man. hahah

The consensus of opinion on here, is to stay on the Femoston a bit longer, so, that is exactly what I am going to do.
My hope is for it to work, and for me to just take the daily HRT pill, forget about meno and get on with my life, waking up sweat-free and optimum temperature.

Thanks for the advice about the oestrogen increase and headaches. That also makes me feel better, as my body is now accepting the oestrogen, it seems, so I feel positive about this.

I am glad that I made this thread, because you lovely ladies have really helped and reassured me.

A big thank you for that. :)
Logged

KatieLiz

  • Guest
Re: Stopping HRT, risk to bones
« Reply #8 on: January 29, 2014, 06:44:33 PM »

Hi Dandelion

It sounds like your own hormones are fluctuating quite a lot, which is why some days you feel better than others.  I think you should keep a diary of all your symptoms and then go back to your doctor after you have given the higher dosage another couple of months.

One tip that may help is to take your tablet in the evening.  It could be that you are waking up in a sweat as your body is running low on estrogen overnight.

I think you should really give this a go for 3 months before changing again, as sometimes the changing can cause more symptoms and your body needs to settle down.
Logged

lubylou

  • Guest
Re: Stopping HRT, risk to bones
« Reply #9 on: January 29, 2014, 07:32:37 PM »

HI Dandeloin
I would be inclined to give the 2/10 a bit longer to work for you rather than give up on it.

When I was put on HRT my GP said I needed it (early menopause) it was to protect my bones (among other things) and when I said I wanted to come off (this was when I was 52) he said he wanted me to I stay on until I was 55 (which I did). It was explained to me that staying on under until 51/51 was only putting back the oestrogen that my body would naturally have been making (using 51/51 as the average age of menopause), So the logic was that any HRT after 50/51 “starts the clock” for the number of years on HRT rather than the HRT replacing what was not being produced by your body naturally. Anyway that's what I was told.

You say that you “don't even know if I am menopausal”. Have you had any blood tests to see where you are in terms of the menopause?

I hope this makes sense and is helpful for your next appt with your GP.

Lubylou
Logged

Sarah2

  • Guest
Re: Stopping HRT, risk to bones
« Reply #10 on: January 29, 2014, 07:36:06 PM »

Hi

The chairman of NICE made the point last week that patients need to be more pushy and ask their doctors for drugs and treatment that are available. If this means educating your dr about Utrogestan, so be it!  You just need to be calm and persistent!

I can tell you quite a bit about bones after being diagnosed with osteopenia at your age.

I was nowhere near menopause- not for another 7 years in fact, but my bone density was already low.

I knew this because I'd paid for a private DXA scan.

I spent the next few years building my bones with exercise and diet ( can't eat dairy so this was a challenge.)

I got a personal trainer and lots of info from the NOS about which exercise to do.

If you are post meno at 47 then yes, you need HRT really. If you are still peri then you maybe can go without. I have a bone density scan every 2-3 years. Up till now my bones have got much better and are now classed as 'normal'. Some of this may be due to HRT but I managed to increase my bone density for 2 scans in a row ( 4 years in total) before using HRT.

You only need a tiny bit of oestrogen to build bone. They used to think it was a minimum of 1.5mgs a day but there is new evidence that even a quarter of that amount can help. I think this is on some paper possibly written/ summarised by Nick Panay.

Not sure if this helps and not sure if your question is about bones or about finding a suitable HRT?

Your next step could be to ask for a bone density scan then you know where you are and can make a decision on that. If your dr won't fund it then you can do it privately if that is an option for you.



« Last Edit: January 29, 2014, 07:38:28 PM by Sarah2 »
Logged

Dandelion

  • Member
  • *
  • Posts: 1863
Re: Stopping HRT, risk to bones
« Reply #11 on: January 29, 2014, 07:37:16 PM »

Hi Dandelion

It sounds like your own hormones are fluctuating quite a lot, which is why some days you feel better than others.  I think you should keep a diary of all your symptoms and then go back to your doctor after you have given the higher dosage another couple of months.

One tip that may help is to take your tablet in the evening.  It could be that you are waking up in a sweat as your body is running low on estrogen overnight.

I think you should really give this a go for 3 months before changing again, as sometimes the changing can cause more symptoms and your body needs to settle down.
Hi Katie and thanks for your reply.

I have been keeping a daily record of my symptoms, noting when each thing happens.

After reading this thread, i feel quite optimistic, as the white discharge and headaches have just started coming this week and it has made me feel that the oestrogen is being accepted by my body.
I will give this higher dose till the end of my supply which runs out in about 10.5 weeks.
By then, I will have tapered off the valium completely, only about half a mg to go.
The valium taper has gone really well, so I hope the hrt follows suit.

:)
Logged

Dandelion

  • Member
  • *
  • Posts: 1863
Re: Stopping HRT, risk to bones
« Reply #12 on: January 29, 2014, 07:45:24 PM »

Hi
The chairman of NICE only made the point last week that patients need to be more pushy and ask their doctors for drugs and treatment that are available. If this means educating your dr about Utrogestan, so be it!

I can tell you quite a bit about bones after being diagnosed with osteopenia at your age.

I was nowhere near menopause- not for another 7 years in fact, but my bone density was already low.

I knew this because I'd paid for a private DXA scan.

I spent the next few years building my bones with exercise and diet ( can't eat dairy so this was a challenge.)

I got a personal trainer and lots of info from the NOS about which exercise to do.

If you are post meno at 47 then yes, you need HRT really. If you are still peri then you maybe can go without. I have a bone density scan every 2-3 years. Up till now my bones have got much better and are now classed as 'normal'. Some of this may be due to HRT but I managed to increase my bone density for 2 scans in a row ( 4 years in total) before using HRT.

You only need a tiny bit of oestrogen to build bone. They used to think it was a minimum of 1.5mgs a day but there is new evidence that even a quarter of that amount can help. I think this is on some paper possibly written/ summarised by Nick Panay.

Not sure if this helps and not sure if your question is about bones or about finding a suitable HRT?

Your next step could be to ask for a bone density scan then you know where you are and can make a decision on that.
Hi Sarah

Sorry to hear you were diagnosed with ostapenia.

I am peri menopausal. I have been flushing for over two years now, but I didn't know what it was, and blamed the valium I was tapering from.

I had a blood test and the doctor said the result was to run another test. Im assuiming the result was ambiguous.
My doctor said that as I am flushing, she was happy to prescribe the HRT.
I cannot think of any other explaination for my flushing, but earlier today, I was really fed up and assumed that as femoston worked for other women but not for me, I jumped to the conclusion that I must have some other problem.

Thanks for the idea of bone density scan. That's something else I can request.
I got myself quite worried about bones, but then I remembered my mother.
As far as I can tell, my mum swapped her HRT (I think it was called premarin) post hysterectomy, for natural ways of getting rid of flushes.
She has never broken any bones (*touches wood)
I don't speak to my mum so I cannot ask her, or my two sisters how their meno is going, and even if they are meno.
Logged

Dandelion

  • Member
  • *
  • Posts: 1863
Re: Stopping HRT, risk to bones
« Reply #13 on: January 29, 2014, 07:48:21 PM »

HI Dandeloin
I would be inclined to give the 2/10 a bit longer to work for you rather than give up on it.

When I was put on HRT my GP said I needed it (early menopause) it was to protect my bones (among other things) and when I said I wanted to come off (this was when I was 52) he said he wanted me to I stay on until I was 55 (which I did). It was explained to me that staying on under until 51/51 was only putting back the oestrogen that my body would naturally have been making (using 51/51 as the average age of menopause), So the logic was that any HRT after 50/51 “starts the clock” for the number of years on HRT rather than the HRT replacing what was not being produced by your body naturally. Anyway that's what I was told.

You say that you “don't even know if I am menopausal”. Have you had any blood tests to see where you are in terms of the menopause?

I hope this makes sense and is helpful for your next appt with your GP.

Lubylou
Hi Loubylou

Thanks for your reply also.

I put my reply about saying I may not be meno on another post, sorry for the confusion.
I said it as other women seemed to get on with Femoston, so when I thought it wasnt working, I jumped to the conclusion my problems lay elsewhere.

I am glad you have a nice doctor. I like my doctor, I am just dissappointed at the lack of choices of hrt at my surgery.
Logged

lubylou

  • Guest
Re: Stopping HRT, risk to bones
« Reply #14 on: January 29, 2014, 11:02:07 PM »

Hi,
The section that Sarah2 refers to in the Nick Paney (and others) done on behalf of The British Menopause Society and Women's Health Concerns says:

Osteoporosis
HRT is effective in preserving bone density and preventing
osteoporosis in both spine and hip, as well as
reducing the risk of osteoporosis-related fractures.
HRT is the first-line therapeutic intervention for the
prevention and treatment of osteoporosis in women
with POI and menopausal women below 60 years, particularly
those with menopausal symptoms.
Initiating HRT after the age of 60 years for the sole
purpose of the prevention of osteoporotic fractures is
not recommended.
The bone-protective effect of oestrogen is doserelated.
Recent studies have shown a bone-preserving
effect even with relatively low doses.
The bone preserving effect of HRT on bone mineral
density declines after discontinuation of treatment.
Some studies have shown that the use of HRT for a
few years around the menopause may provide a longterm
protective effect many years after stopping HRT.
Logged
Pages: [1] 2